Role Title: Redcap Database Creation Intern
Organisation: The Kids Research Institute Australia
Internship Period: Summer (November - December)
Location: Nedlands
Are you interested in learning how to create a REDCap database for research in an ultra-rare disease?
The Redcap database will store all data for a 24-month research project on Nutrition profiling using novel technologies in GSD patients at PCH. Data will be collected for the 13 paediatric patients with glycogen storage disease, across 8 different time points on growth measures, biochemical, ultrasound, indirect calorimetry and nutritional analysis. The database will be designed to optimise data export for statistical analysis.
Key duties/accountability:
• With your supervisor, gain a thorough understanding of your role and how your work will
contribute to the organisation and its communities
• Develop a database plan, including scope, methodology, and a clear timeline for
deliverables
• Throughout the project, consult with your supervisor and, as appropriate, other internal PCH metabolic team members or external stakeholders, to inform your research
• Develop a report and/or presentation of the findings (which may include recommendations or next steps)
• If necessary, develop handover materials for a staff member or subsequent intern to continue the project into the next phase
• Present the findings of the research to relevant internal and external stakeholders
• Report regularly to your supervisor on progress and findings throughout.
The Kids Research Institute Australia is based within the Perth Children’s Hospital, and is one of the largest, and most successful medical research institutes in Australia, comprising a dedicated and diverse team of around 1,000 staff, students and honoraries. We've created a bold blueprint that brings together community, researchers, practitioners, policy makers and funders, who share our vision to improve the health and wellbeing of children through excellence in research.